The Autism Genetics & Human Diversity Project

Funded by the National Institutes of Health, the Autism Genetics & Human Diversity Project aims to identify genetic risk for autism spectrum disorder (ASD) in the African American community. Ethnically diverse populations are often underrepresented in ASD research. Therefore, this study project addresses a significant gap in our understanding of the full spectrum of autism by focusing on African American families. In addition to diversifying the research landscape, the project aims to investigate the challenges that African American families face in obtaining an ASD diagnosis and services for their children. In so doing, the study will hopefully shed light on disparities in care that may impact outcomes for African American children affected by ASD.

Participating families include individuals age 3 or older with ASD or suspected ASD, and at least one biological parent available to participate as well. Participation involves diagnostic assessment for ASD, physical exam, blood draw, questionnaires, and parent interviews. Monetary compensation ($250) and a feedback report are provided to participating families, along with opportunities for future research and education through the UCLA Center for Autism Research and Treatment (CART).